Helpful Resources

Proteinuria in Nephrotic Syndrome Helpful Resources

We gathered a variety of resources that can help you to stay informed and learn more about proteinuria in nephrotic syndrome.

Check out some of these helpful websites and tools as you search for a treatment option that works for you.

Watch and Learn

PEOPLE LIVING WITH PROTEINURIA IN NEPHROTIC SYNDROME
OPEN UP ABOUT THEIR CONDITION

From dealing with symptoms before diagnosis to practical ideas for day-to-day living,
several people share their personal journeys.

Downloadable Tools

For Proteinuria in Nephrotic Syndrome

Downloadable Tools

For Proteinuria in Nephrotic Syndrome

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Doctor Discussion Guide

Get your thoughts and questions together before your appointment. That will help you make the most of your time with your doctor.

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Lab Results Tracker

This tool can help you measure your progress based on your lab test results. It can also help you stay more involved in your treatment.

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Informative Websites

For Proteinuria in Nephrotic Syndrome

Click or tap on the organization names below to learn more about each one.

American Association of Kidney Patients
This national association is the “independent voice of kidney patients” that offers patient-centered education, advocates for high-quality healthcare, and brings kidney patients together to promote community.

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American Kidney Fund
A national association that believes in fighting kidney disease through direct financial support to patients in need, health education, and prevention efforts.

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American Society of Hypertension (ASH)
This national organization provides information about hypertension (high blood pressure), a possible complication of nephrotic syndrome.

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The American Society of Nephrology
This national group strives to lead the fight against kidney disease by educating health professionals, sharing new knowledge, advancing research, and advocating for the highest quality of care for patients.

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Lupus Foundation of America
A national organization devoted to improving quality of life for those affected by lupus nephritis through research, education, and advocacy.

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National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)
A national organization that conducts and supports medical research and research training for a variety of diseases, and distributes science-based information to improve people’s health and quality of life.

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National Kidney Foundation
A major voluntary national nonprofit health organization dedicated to preventing kidney and urinary tract diseases, improving the health and wellbeing of individuals and families affected by kidney disease, and increasing the availability of all organs for transplantation.

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The NephCure Foundation
An international nonprofit organization dedicated to supporting research seeking the cause of nephrotic syndrome and FSGS, improving treatment, and finding a cure.

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Nephrotic Syndrome—MayoClinic.com
This online resource provides useful and up-to-date information and tools that reflect the expertise and standard of excellence of the Mayo Clinic.

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Diagnosis—now what?

Her nephrologists gave Jenny the information she needed to understand her diagnosis—and face her future.

This website may identify third-party organizations and provide links to third-party websites or other third-party information (“Third-Party Content”). The Third-Party Content is meant for informational purposes only, is not endorsed by or under the control of Mallinckrodt, and is not meant to replace a physician's medical advice. Mallinckrodt has no responsibility or liability for and makes no representations whatsoever about any Third-Party Content.

Knowledge is power

Jenny finds confidence by asking questions and working closely with her doctors.

Additional Support Resources

STAYING CONNECTED

Additional Support Resources

STAYING CONNECTED

There are other resources you can take advantage of to connect with people living with proteinuria in nephrotic syndrome or other kidney conditions. Here are just a few examples to help you get started:

Inspire.com
With more than 500,000 members, Inspire can help you connect with others who share your health concerns and know what you're going through.

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Renal Support Network
An online, patient-run organization that provides a variety of programs and services for patients, family members, and caregivers.

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NephSpace
Part of NephCure Kidney International, this online support community offers patients and caregivers the opportunity to connect with others affected by nephrotic syndrome.

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This website may identify third-party organizations and provide links to third-party websites or other third-party information (“Third-Party Content”). The Third-Party Content is meant for informational purposes only, is not endorsed by or under the control of Mallinckrodt, and is not meant to replace a physician's medical advice. Mallinckrodt has no responsibility or liability for and makes no representations whatsoever about any Third-Party Content.

Patient and Prescription Assistance

Click or tap on the organization names below to learn more about each one.

American Kidney Fund
The American Kidney Fund leads the nation in providing charitable assistance to dialysis patients who need help with the costs associated with treating kidney failure.

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Benefits Check Up
A free service that helps you find state, federal, and private benefits programs available where you live. These benefits programs can help pay for prescriptions, healthcare, food, utilities, and more.

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Centers for Medicare & Medicaid Services
Find news, information, and links for healthcare-related resources including Medicare, Medicaid, and more.

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NeedyMeds
A national non-profit information resource dedicated to helping people find assistance programs to help them afford their medications and other healthcare costs.

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Partnership for Prescription Assistance
The Partnership for Prescription Assistance helps qualifying patients without prescription drug coverage get the medicines they need for free or nearly free.

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This website may identify third-party organizations and provide links to third-party websites or other third-party information (“Third-Party Content”). The Third-Party Content is meant for informational purposes only, is not endorsed by or under the control of Mallinckrodt, and is not meant to replace a physician's medical advice. Mallinckrodt has no responsibility or liability for and makes no representations whatsoever about any Third-Party Content.

Helpful Reading

You might find the following reading to be educational and informative:

This website may identify third-party organizations and provide links to third-party websites or other third-party information (“Third-Party Content”). The Third-Party Content is meant for informational purposes only, is not endorsed by or under the control of Mallinckrodt, and is not meant to replace a physician's medical advice. Mallinckrodt has no responsibility or liability for and makes no representations whatsoever about any Third-Party Content.

 
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